Wednesday, November 3, 2010

#46 Parkinson’s Study

A news report from NY Times.
Google Co-Founder Backs Vast Parkinson’s Study

Please share your thoughts (i.e. using the comment function) after reading the report.

19 comments:

  1. I think this is a good idea to explore Parkinsons's whether or not they find something.

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  2. I think that it is a good idea. I agree that a big problem with the study is having patients enter their own symptoms rather than have a doctor check them out.

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  3. I feel this is a good idea. There are several studies like this with cancer also. My mother-n-law had breast cancer and wants to see if she has the qualifications for further cancer so shes doing testing to see that. Im glad this man has the money to put toward this to help his future and others as well.

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  4. The article is interesting. I think 23andme has a good idea, but the fact that they are doing the study via internet is cause for concern. How are they going to be able to test the volunteers? The fact that Brin is going to be a part of the study gives it much more interest for many people. Because he is participating, it may help the company get more volunteers than normal. The more volunteers they have, the more data they can collect.

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  5. I have known about this type of pretesting for disease for some time now. My mother had breast cancer and wanted my sister and I to take a test similar to that conducted by 23andme. In my opinion, as long as the disease is curable or treatable then I believe it would be wise to have the test done. I also feeel, however that I personally don't want to go through my life worried about when or if I am going to get sick. I feel that it takes away a certain quality of life simply due to excessive worry.

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  6. I think it is excellent that 23and me along with the cofounder of google is funding the research of Parkinson's disease. However, I wish it would have given more information on the types of testing and studies that they plan on doing. The details of this research project is very vague. With that being said, I can understand why the comment that the only thing special behind this is the rich man providing the money was said. The only real information that was given is the way which the people being studied on were found, who was paying, and the company doing the research. The article might get more response if it had given many details about the upcoming studies and the procedures that are to be implemented.

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  7. I thought this article was very intruiging. Although, it ususally takes a rich person to come down with a terrible disease before notice is really taken. Regardless, it is noble of this man to fork over so much money to fund research to hopefully one day find a cure. It interested me that just by analyzing your DNA for certain traits you could know what conditions you are possibly at risk for in the future. However, I think it could cause a lot of people to an early grave worrying their life away that because they could possibly develop a disease in the future. This research doesn't guarantee anything, just gives you a way to hopefully prepare for "what if"

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  8. I think its great that someone is willing to fund this project. I wish this sort of thing could happen for every disease and not just Parkinsons. I didn't like the comment that Dr.Kari Stefansson made,"The only thing that is remarkable is that there is a very rich man who is going to fund it." I understand that she had conducted the same research. It doesn't mean that its pointless. Many people overlook things or catch something of grave importance that hundreds of other people miss. I think its great that the patients only have to pay a fraction of the cost. My only concern is if they are able to attain the proper information; a potential problem with the study was that the participants would report their symptoms, rather than being examined and interviewed by a doctor. That could mean the data might be of poor quality." I wish the best for this research.

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  9. This is a interesting article. There are many positive aspects about the ideas along with some negative ones as well. For the most part, I agree with Sarah Murray, the director of genetics at a specific institute. She says the people would the participants would only report their symptoms and nothing else. I agree with her. She goes on to say it would not be accurate, because of this specific reason. In my opinion, that is what doctors are for and that is what they get paid to do. There are many postive aspects of this plan including people who do not suffer from this disese can voluteer to help as well. I think this is a really good aspect to the plan.

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  10. I do believe the intentions of Mr. Brin are good. However, I do think that the studies and research should be a little different. Eemphasis should be put on researching and coming up with new was to control and prevent Parkinson's disease rather than using more money to pile on studies that may not find any further problems or causes in the genes. Take the information they have now and start working on medications that will help prevent and control the diesase rather than find more "possible" reasons of the disease. Athe same time do more studying, but do not keep looking for problems when some already exsist that need attention.

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  11. I think it is amazing to think that someone would donate that much money for something like this. The money is obviously going for a good a good cause as Parkinson's is a very sad disease that affects not only the individual with the disease, but also affects the family around them. Knowing that over 1.5 million Americans over the age of 50 suffer from Parkinsons is a really staggering statistic that makes us thankful for the healthy family members we do have. I know Mr. Brin has plenty of money, but it's good to see someone take a stand and use the money for something that can make a difference in someone's life.

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  12. I think it is a very good thing for a man who is so rich to invest his money into a noteworthy cause such as researching about Parkinson's disease. I hope that medicine can catch up, so that by the time Mr. Brin may have the disease, it can be cured. With this study collecting samples from 10,000 people, I think that it will render a much better look at the disease than a study with just a few hundred participants. I personally know a lady who has Parkinson's disease, and I think it is always great to have companies reasearching diseases, learning more about them, and coming up with ways to treat or cure them.

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  13. I find it very interesting that one person is funding this huge study on Parkinson's. Hopefully this research will most definitely benefit toward finding a cure. I also found some of the statistics shocking like the fact that 1.5 million Americans have this disease.

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  14. This article talks about Parkinson's Disease and its effects on people. There are many people that are effected by Parkinson's disease and I believe what Mr. Brin and 23andme is doing will be beneficial to society. I believe that the number of 10,000 people to be studied is a very good number. I believe that the results will be shown better if there is a doctor written statement about the effects that this disease has on each person in the study but as far as lifestyle, I believe that the patient should be able to fill this part out on the questionaire. I also think that the person should be able to submit there symptoms but this should be followed up by a doctors approval. I believe that the intentions are good and I believe that it would benefit the thousands of people effected by this disease. It only takes a dedicated person to be willing to help so many in need.

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  15. I had no idea that 1.5 million Americans suffered from Parkinson's disease. The only person I have even heard of with Parkinson’s is Michael J. Fox. I agree that more studies should be conducted, however, I do not think it is a good idea to do so by having people to sign up online and list their symptoms. How would one know if a person lied or not; or, is like my sister, a hypochondriac who thinks she has something when she really does not.

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  16. I think that this is a great way to find out more information and research on Parkinson's disease. Hopefully, it will be used for other diseases in the future. If they can use this study for positive outcomes regarding Parkinson's disease, then it could lead to bigger and better cures for other diseases as well. However, I do not know if the questionnaires will be enough to lead researchers in new directions about the disease.

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  17. This is an interesting study. My Great-Aunt has Parkinson's, and has had several brain surgeries to fix it. She has a battery operated machine in her chest that is wired to her brain to control the trimmers. If this study had been available years ago, maybe the scientists would have been able to help her with medication other than the brain surgeries she had to endure while awake. However, even with the machine helping her, she still has trimmers and her speech and movement is slow.

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  18. If this testing is being funded for the sole purpose of helping those with Parkinson's Disease and those who have a tendency to get it and not as another way to make a profit, I am all for it.

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  19. I think this is a great article. Hopefully this will help future funding and finding cures for this disease. Cancer runs in my family, and it is nice to see people out there that care and want to end this. I will back up anyone who wants to find a cure for the diseases of this world.

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